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When God goes shopping for boxers, He picks out Scooby Doo.

You may not have known my nephew, I wish you had the chance. He was born with a genetic disease called Pelizaeus–Merzbacher disease.

“Pelizaeus Merzbacher disease (PMD) is a rare central nervous system disorder in which coordination, motor abilities, and intellectual function are delayed to variable extents.” – Wikipedia

Josh passed away on February 14, 2016 from breathing complications. This was a story my sister, Aleecia, shared with me about her daughter Jayden and her son Josh. They had a very special relationship. I hope you enjoy this retelling : ) read more

The boy who changed the World

On February 14, 2016…. we had to say “See you later” to our special boy Josh, my nephew. Even though he had many limitations, he really did change so many lives during his 13 years on this earth.

He was born with a rare genetic disease that impacted all his motor control.

On the day he passed away, we were driving across the country to get to his side. It was the darkest day of my life. When I realized that I wouldn’t get to see him again, and it was his time to go… this is what I wrote. I hope you can see how much of a difference this little boy made in my life. read more